Kacie Kendal

My little angel Kacie

Leanne's baby Kacie was diagnosed with Trisomy 18. She was born on 30th December 2013 and lived for 45 minutes.

"Everything seemed fine in my pregnancy, until about 20 weeks when I had a scan and they said my baby seemed a bit small. 
 
I didn't think much of it as Kacie was my 6th baby and some of my babies were on the small side, and then over the next few weeks I started getting bigger and my consultant said all seemed fine. 
 
Then I stated retaining lots of fluid, and was scared Kacie had stopped moving, so when I had a scan it was great to see her moving around and kicking. But at the same time I was told that the scan showed she had fluid on brain, and that she had something wrong with her little heart.

At 29 weeks I was sent for an amnio, and on Christmas Eve 2013 I had the amnio done.

On 20th December, I went up to get results, but I went into labour at the same time, and then the consultant told me that my baby Kacie had Edwards Syndrome. 
 
I had no clue what this was - I had never heard of Edwards Syndrome - and I told my doctor I was in labour. He confirmed I was, and took me to the labour ward and he sat on the edge of my bed and said: "Leanne, do you realise your baby is going to die?". 
 
I was in total shock, and then he said that Kacie was 'incompatible with life'. I remember he said that my baby girl would die either during or after delivery. At this point all I wanted was to have my baby and spend as much time as I could with her if she was still alive, as they were going to make no effort to help her, which I found really upsetting.

Precious time... Leanne and Kacie

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My beautiful little angel Kacie was born at 12.05. I held her in my arms, and she seemed so peaceful, not moving or crying. She was such a tiny, perfect little darling. 
 
At 12.50 I gave her to her daddy to hold, and my heart was torn out when she passed away in his arms. 
 

We'll never forget her, our special little princess. We love you forever Kacie xxx"

Love you forever baby girl...

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Tiny little fingers...

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Rest in peace little Kacie

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TRISOMY 18 or EDWARD's SYNDROME arises because of the presence of an extra chromosome. There is a significant risk of miscarriage before birth, but, quite contrary to recent reporting, studies have found that the average duration of survival for children who lived until birth with Trisomy 18 was 14.5 days; with 39% of babies surviving for more than a month, while 8.4% survived for more than a year.

Rasmussen SA1, Wong LY, Yang Q, May KM, Friedman. Pediatrics. Population-based analyses of mortality in trisomy 13 and trisomy 18. 2003 Apr;111(4 Pt 1):777-84.JM. http://www.ncbi.nlm.nih.gov/pubmed/12671111

Links   Trisomy Help http://www.trisomyhelp.org/