A place where parents can share their memories, their stories, their love and their pain; where their children are remembered and cherished; and where we acknowledge that every life counts.

Privacy Policy

Welcome to Every Life Counts, an online outreach where parents of children who were diagnosed with a terminal condition can share their memories, their joy, their pain, and their love. At Every Life Counts, we know that you care how information about you is used and shared. This Privacy Policy explains what information of yours will be collected by EVERY LIFE COUNTS when you use our online services, how the information will be used, and how you can control the collection, correction and/or deletion of information. We will not use or share your information with anyone except as described in this Privacy Policy. This Privacy Policy does not apply to information we collect by other means (including offline) or from other sources.

INFORMATION WE COLLECT

We collect data in a number of circumstances, such as when:

• You complete a form on this website, or if you fill out a form delivered by a representative
• You have a conversation on the doorstep, street, or over the phone with a representative.
• You interact with us online, including on social media channels such as Facebook or Twitter
• You join the EVERYLIFECOUNTS.IE as a member, affiliated or registered supporter, donate or sign up to volunteer for us.

User-Provided Information: You provide us information about yourself, such as your name and e-mail address, if you register for Every Life Counts (including by "following," "liking," linking your account to Every Life Counts, etc., on a third party website or network). If you correspond with us by email, we may retain the content of your email messages, your email address and our responses. We may also retain any messages you send through Every Life Counts. You may provide us information in user content you post to Every Life Counts website.

THIRD PARTY SERVICES

EVERY LIFE COUNTS uses the Always Amber platform to organize our community of members, supporters and prospects. You can read more about that company and its features and polices at AlwaysAmber.ie. When you visit Every Life Counts, Always Amber may send one or more cookies – a small text file containing a string of alphanumeric characters – to your computer that uniquely identifies your browser and lets Always Amber help you log in faster and enhance your navigation through Every Life Counts. You can read more about how the Always Amber service interacts with and protects your information at www.alwaysamber.ie/support/privacy.php

EVERY LIFE COUNTS uses Google Analytics to help understand use of Every Life Counts. This service collects the information sent by your browser as part of a web page request, including cookies and your IP address, and their use of it is governed by their Privacy Policy.

HOW WE USE YOUR INFORMATION

We use the personal information you submit to operate, maintain, and provide to you the features and functionality of Every Life Counts.

By providing Every Life Counts your email address (including by "following," "liking," linking your account to Every Life Counts, etc., on a third party website or network), you consent to our using the email address to send you Every Life Counts -related notices, including any notices required by law, in lieu of communication by postal mail. You also agree that we may send you notifications of activity on Every Life Counts to the email address you give us, in accordance with any applicable privacy settings. We may use your email address to send you other messages, such as newsletters, changes to features of Every Life Counts, or other information. If you do not want to receive such email messages, you may opt out at our UNSUBSCRIBE PAGE.

Following termination or deactivation of your Every Life Counts account, Every Life Counts may retain your profile information and user content for a reasonable time for archival purposes. Furthermore, EVERY LIFE COUNTS may retain and continue to use indefinitely all information (including user content) contained in your communications to other users or posted to public or semi-public areas of EVERY LIFE COUNTS after termination or deactivation of your account.

EVERY LIFE COUNTS reserves the right, but has no obligation, to monitor the user content you post on EVERY LIFE COUNTS. We reserve the right to remove any such information or material for any reason or no reason, including without limitation if in our sole opinion such information or material violates, or may violate, any applicable law or to protect or defend our rights or property or those of any third party. EVERY LIFE COUNTS also reserves the right to remove information upon the request of any third party.

HOW WE SHARE YOUR INFORMATION

Personally Identifiable Information: EVERY LIFE COUNTS will not rent or sell your personally identifiable information to others. EVERY LIFE COUNTS may share your personally identifiable information with third parties for the purpose of providing EVERY LIFE COUNTS services to you. If we do this, such third parties' use of your information will be bound by this Privacy Policy. We may store personal information in locations outside the direct control of EVERY LIFE COUNTS (for instance, on servers or databases co-located with hosting providers).

Any personal information or content that you voluntarily disclose for posting to EVERY LIFE COUNTS, such as user content, becomes available to the public, as controlled by any applicable privacy or website customization settings. If you remove information that you posted to EVERY LIFE COUNTS, copies may remain viewable in cached and archived pages, or if other users have copied or saved that information.

Except as otherwise described in this Privacy Policy, EVERY LIFE COUNTS will not disclose personal information to any third party unless required to do so by law or subpoena or if we believe that such action is necessary to (a) conform to the law, comply with legal process served on us or our affiliates, or investigate, prevent, or take action regarding suspected or actual illegal activities; (b) to enforce this policy, take precautions against liability, to investigate and defend ourselves against any third-party claims or allegations, to assist government enforcement agencies, or to protect the security or integrity of our site; and (c) to exercise or protect the rights, property, or personal safety of EVERY LIFE COUNTS, our users or others.

HOW WE PROTECT YOUR INFORMATION

EVERY LIFE COUNTS cares about the integrity and security of your personal information. We cannot, however, ensure or warrant the security of any information you transmit to EVERY LIFE COUNTS or guarantee that your information on the service may not be accessed, disclosed, altered, or destroyed by breach of any of our physical, technical, or managerial safeguards. Your privacy settings may also be affected by changes to the functionality of third-party providers, such as social networks. EVERY LIFE COUNTS is not responsible for the functionality or security measures of any third party.

To protect your privacy and security, we take reasonable steps (such as requesting a unique password) to verify your identity before granting you access to your account. You are responsible for maintaining the secrecy of your unique password and account information, and for controlling access to your email communications from EVERY LIFE COUNTS, at all times.

COMPROMISE OF PERSONAL INFORMATION

In the event that personal information is compromised as a result of a breach of security, EVERY LIFE COUNTS will promptly notify those persons whose personal information has been compromised, in accordance with the notification procedures set forth in this Privacy Policy, or as otherwise required by applicable law.

YOUR CHOICES ABOUT YOUR INFORMATION

You may, of course, decline to submit personally identifiable information through EVERY LIFE COUNTS, in which case EVERY LIFE COUNTS may not be able to provide certain services to you. You can review and correct the information about you that EVERY LIFE COUNTS keeps on file by contacting us directly at info@everylifecounts.ie

CHILDREN'S PRIVACY

Protecting the privacy of young children is especially important. For that reason, EVERY LIFE COUNTS does not knowingly collect or solicit personal information from anyone under the age of 13 or knowingly allow such persons to register for EVERY LIFE COUNTS accounts. If you are under 13, please do not send any information about yourself to us, including your name, address, telephone number, or email address. No one under age 13 is allowed to provide any personal information to or on EVERY LIFE COUNTS. In the event that we learn that we have collected personal information from a child under age 13 without verification of parental consent, we will delete that information as quickly as possible. If you believe that we might have any information from or about a child under 13, please contact us at info@everylifecounts.ie

LINKS TO OTHER WEB SITES

We are not responsible for the practices employed by websites linked to or from EVERY LIFE COUNTS, nor the information or content contained therein. Please remember that when you use a link to go from EVERY LIFE COUNTS to another website, our Privacy Policy is no longer in effect. Your browsing and interaction on any other website, including those that have a link on our website, is subject to that website's own rules and policies. Please read over those rules and policies before proceeding.

TRANSFER OF DATA OUTSIDE OF THE EEA

We may transfer some or all of your personal information outside of the EEA. The privacy laws of the receiving country may be different from those in the EEA and may not have adequate data protection standards. We will always have appropriate safeguards in place when transferring your personal information outside of the EEA, and you may ask us for a copy of these safeguards.

NOTIFICATION PROCEDURES

It is our policy to provide notifications, whether such notifications are required by law or are for marketing or other business related purposes, to you via email notice, written or hard copy notice, or through conspicuous posting of such notice on EVERY LIFE COUNTS, as determined by EVERY LIFE COUNTS in its sole discretion. We reserve the right to determine the form and means of providing notifications to you, provided that you may opt out of certain means of notification as described in this Privacy Policy.

WHAT ARE COOKIES

Cookies are small text files that are placed on your computer by websites that you visit. They are widely used in order to make websites work, or work more efficiently, as well as to provide information to the owners of the site.

• Cookies are simple text files. They are needed to help navigate automatic logins, password authentication, shopping cart functions, personal preference settings and a variety of other functions. Cookies make these functions smooth and hassle-free to the user.
• Cookies don't search your computer for information. Cookies register the information you provide through your browser. When you enter personal and/or financial information on a website, the cookies store your information, both for ease of use on your next visit, and for ad tracking.
• Information stored by cookies is usually encoded; it is protected from potential computer hackers by security features.
• Cookies are necessary and enhance your browsing experience. Without cookies, you would have to reenter all of your information every time you revisited a site. A cookie will simply remember your information on the website to save you time.
• Cookies only store the information you provide. A cookie cannot "grab" your email address. A cookie can store your email address on the website—if you have typed in your email address; a cookie stores all information you voluntarily give when you visit a website.
• Cookies themselves contain very little information other than the URL of the website that created the cookie. Because there is so little information, a cookie can't be used to identify you by name or other personal information. However, advances in technology have seen an increase in how companies can manipulate cookie information to create a profile of your web surfing habits. Again, this is a profile of a particular consumer's surfing habits and product preferences, there is no name (your name) attached to the profile.
• Cookies are harmless. They cannot introduce viruses on your computer.
• Cookies are not the same thing as Spyware. A cookie stores your website surfing information; Spyware stores your Internet surfing information (every site you visit).

Visit www.wikihow.com/Disable-Cookies to see how to disable cookies from a number of devices.

NEW RIGHTS AS OF 25 MAY 2018

The EU General Data Protection Regulation reinforces your rights to privacy. Every Life Counts is committed to respecting your rights under GDPR and will comply with our obligations under the law. If you would like to learn more about GDPR please contact us at the Data Protection Officer at Dominick Court, 41 Dominick Street Lower, Dublin 1.

CHANGES TO OUR PRIVACY POLICY

If we change our privacy policies and procedures, we will post those changes on SAV8.IE to keep you aware of what information we collect, how we use it and under what circumstances we may disclose it. Changes to this Privacy Policy are effective when they are posted on this page.

If you have any questions about this Privacy Policy, the practices of this site, or your dealings with this website, please contact us at info@everylifecounts.ie, or send mail to: EVERY LIFE COUNTS Dominick Court, 41 Dominick Street Lower, Dublin 1, 01 879 2382